Showing posts with label Orencia. Show all posts
Showing posts with label Orencia. Show all posts

Friday, October 9, 2009

She's Getting 'The Treatment'





In an effort to not explain immunobiology, pathology and microbiology in five minute sound bites, when I have to go for 'The Treatment' once a month a leave it at that. However, now that I have my own virtual soapbox and presumably no reader is eating lunch, I have thus deemed this a perfect time to explain the procedure.


Once a month, if I do not have an infection/fever or upcoming major procedure, i get 'The Treatment' or better known by our friends at Bristol-Myers-Squibb as Orencia.

The rheumatologist office is now like my very own Cheers, yes its where everybody knows my name. I usually end up sitting next to the man in his 60s who tells me his rectal and work history or the embittered recently diagnosed middle aged woman.

Once the nurse calls me, i take off my shoes, sweater, socks and earrings to make sure the scale is not off. I get the usual interview by both nurse and doctor before things proceed. Any infection, fever. new medication, good times had? I get my temp, pulse and blood pressure taken then labs are ordered. Every liquid is drained from me. From urine to blood, they want it and I give it.

My nurses are pros at getting my veins and while they are jabbing me we talk about their ex husbands, my dogs or their grandkids.

If I'm lucky I get seated next to a philosophical old lady who enjoys watching the weather channel or reading US weekly with me. After the labs are sent, the ladies mix up the three bottles into a saline solution bag. Once I am sent up, it doesnt take more than an hour to suck it up. At this point I either read or send out massive texts indicating that I am experiencing boredom.


I adore my nurses and I think my particular rheumatologist has saved me from being wheelchair bound. Furthermore, it can also be used as an excuse for a get together. Over the years, friends/ family have brought in everything from Cosmopolitan Magazines, to 12 packs of Diet Coke to a particular gentleman bringing in a bottle of Tequila.


La Coja

Thursday, October 1, 2009

Inquiring Minds Want to Know

Post Surgery Hip Surgery


Great Friends


Family

I have had a few requests to tell more about myself. Thus, while in the pig flu jail, I wrote up a brief autobiography which is as follows.

"Irish Mexican American female, age 26. Likes pinochle, family guy,studying politics, a good martini and walks on the beach."


However, my 'editors' (thanks Harry) have told that the fore mentioned sounds more like a desperate Craig's list personal than a brief personal background. Here is my second go at it.

I grew up in Denver, the City of. I was fairly healthy until 1995 when I got Rheumatic Fever, the first of many third world disease i would contract to my friend Lola's great amusement . In 1997, I was diagnosed with Juvenile Rheumatoid Arthritis and honestly struggled through the Denver Public School system. I graduated a year early from high school to attended the Community College of Denver, a more disability friendly system.


In 2002, I received a scholarship to the University of Kansas and spent five glorious/challenging years a Jayhawk. I have lived 20 years in Denver, 2 in Mexico and 4 in Kansas. And yes I do count Kansas as a third country.

I have been a loyal consumer of rheumatic drugs and treatments since the mid 1990s. My JRA resume is as follows

Pharmacology 1995- to Present
-Has extensive experience with the following: Celebrex, Methotrexate, Prednisone, Enbrel, Humira, Remicade.
- Currently works closely with Orenica

Treatments 1996- to Present
-IVIG 1996 and 1997
-Plasmapheresis 1997 and 1999
-Double Tendon Release Surgery 1999
-Total Left Hip Replacement 2009


My family has been clinically described as 'one of the most functional dysfunctional families' in the practice and I love most of them to death. The family God has let me choice, a.k.a. my friends, are a big source of love, laughter, stories and strength. I am a major nerd and love to read/study random subjects. I won the local branch of the library's Renter of the Month twice.
Along with my large extended family, I grew up with dogs. My Springer Spaniels along with my Nana Macky wiping my nose from the tissues stuffed in her bra is about all i really remember from childhood.

Our current dogs, Charley (3/4 Springer, 1/4 Lab) and Paco (100% Black Lab) absolutely fill me daily with joy.

I run my own translation business (Richmond Bustamante International), tutor English, and volunteer with disability organizations both in the US and Mexico. As for my future, Id love to go into Public Health to increase the chances of disabled people to lead dignified and full lives.

I'd also like to get a guinea pig.



Con Abrazos,

La Coja